Granulomatosis with polyangiitis (Wegener's)

What is granulomatosis with polyangiitis (Wegener's)?

Granulomatosis with Polyangiitis (Wegener's) is a rare automimmune disorder that causes inflammation of small and medium sized blood vessels (vasculitis) primarily in the lungs and kidneys.

How do members experience granulomatosis with polyangiitis (Wegener's)?

Top 5 symptoms reported by people with granulomatosis with polyangiitis (Wegener's)*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for granulomatosis with polyangiitis (Wegener's)*

*Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with granulomatosis with polyangiitis (Wegener's)*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (2)
Treatment

(Cytoxan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Folic Acid Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)

*Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has granulomatosis with polyangiitis (Wegener's) on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 7
30s 21
40s 28
50s 36
60s 43
70+ 38

Distribution of sex

Sex

Sex Proportion # of patients
Male 49
Female 122
Learn more about our community’s experience with granulomatosis with polyangiitis (Wegener's).

Talk to people with granulomatosis with polyangiitis (Wegener's)

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188

members say they have this condition

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Heart, Blood, and Circulatory,Immune, Inflammatory and Infections,Lungs and Respiratory,Kidneys and Urinary

Learn from others like you living with granulomatosis with polyangiitis (Wegener's).
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