Please read the complete PatientsLikeMe.com Privacy Policy by going to:

PatientsLikeMe.com Privacy Policy

If you have any questions, don't hesitate to ask!

Privacy Policy Overview

While the following introduction to our Privacy Policy does not replace the need to read the full policy, it may help answer some of your most important questions right away.

Under the PatientsLikeMe.com Privacy Policy:

• You own your data

  
  
  • You have the right to access your data at any time.
  
  
  • You have the right to edit or delete any of the data you enter on the site.
  
  
  • You have the right to request timely removal of all your data from the site.
  
  
  • You have the right to request a complete download of your data from the site.
  
  

• You control what you share on the site and what you make visible to others on the site.

  
  
  • You can share as much or as little about yourself on the site as you choose.
  
  
  • You can select one of three Privacy Settings to control what is visible about you on the site. Opt in for the:
    
    
    • Public view if you want the data you enter to be viewable by both non-members and members of PatientsLikeMe
    
    
    • Community view if you want the health data you enter to be viewable on the site by your fellow members
    
    
    • Personal view for the data that you don’t want viewable on the site by anyone but yourself. (For example, you may specify one or more conditions you are tracking should be hidden from your fellow members. Note that the PatientsLikeMe team can see this data when necessary, but other PatientsLikeMe members will not see it.)
    
    



• You agree to allow PatientsLikeMe to use your data to improve the site and to provide insights to all PatientsLikeMe members.




• You agree to allow PatientsLikeMe to share your non-identifying and de-identified data with our partner organizations.

  
  
  • When we collaborate with partner organizations, we share data in a manner that does not identify you or any member on the site. (Examples of organizations we partner with include pharmaceutical companies, non-profit advocacy groups, and research organizations.)
  
  
  • When we share de-identified data (i.e., data that has had all identifiers removed), we contractually forbid the partner from making any attempt to re-identify the data.
  
  
  • If there is ever a time we want to share data that does or could reasonably identify you, we will seek your express, explicit consent to share that data with a specific partner for a specific purpose.



• You agree to allow vendors of PatientsLikeMe to have access to your data.

  
  
  • PatientsLikeMe uses vendors to run the site and perform tasks such as sending emails to you. These vendors have access to your data some of it identifying.
  
  
  • PatientsLikeMe takes precautions to select and use only vendors whose privacy and security practices meet our standards.



• If you have questions, comments, or concerns, we invite you to contact us:

  
  
  • Write to us online
  
  
  • Or at our postal address:
    
    
    • PatientsLikeMe LLC
    • Attn: Privacy and Compliance Dept.
    • 6 Liberty Square, Suite 2602
    • Boston, MA 02109
  
  
  • Our users in Europe also have the option of contacting our representative in the EU:
    
    
    • Foley Hoag AARPI
    • 153 rue du Faubourg Saint-Honoré
    • 75008 Paris, France

We may change our Privacy Policy at any time. We will notify Members of changes we make to the Privacy Policy and will post changes here on the website. We also encourage Members to review this policy periodically, and contact us with any questions or concerns.