What is Stevens Johnson syndrome?
Stevens–Johnson syndrome (SJS) is a life-threatening condition affecting the skin in which cell death causes the epidermis to separate from the dermis. The syndrome is thought to be a hypersensitivity complex affecting the skin and the mucous membranes.
How do members experience Stevens Johnson syndrome?
Top 5 symptoms reported by people with Stevens Johnson syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Stevens Johnson syndrome*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have Stevens Johnson syndrome through your profile, those stories and data appear here too.
Who has Stevens Johnson syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 3 | |
| 30s | 14 | |
| 40s | 15 | |
| 50s | 18 | |
| 60s | 20 | |
| 70+ | 2 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 11 | |
| Female | 62 |
Learn more about our community’s experience with Stevens Johnson syndrome.
Talk to people with Stevens Johnson syndrome
83
83
members say they have this condition
Join
Immune, Inflammatory and Infections,Skin, Hair, and Nails
Learn from others like you living with Stevens Johnson syndrome.
Last updated: