Retroperitoneal fibrosis

What is retroperitoneal fibrosis?

Retroperitoneal fibrosis is a condition characterized by fibrous masses forming in the area behind the stomach and intestines. This excess tissue can block the tubes that carry urine from the kidney to the bladder. Symptoms can include pain, discoloration of the lower limbs and urine changes.

How do members experience retroperitoneal fibrosis?

Top 5 symptoms reported by people with retroperitoneal fibrosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for retroperitoneal fibrosis*

We currently don't have enough shared data that is made public for this condition.

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Who has retroperitoneal fibrosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 3
40s 1
50s 4
60s 15
70+ 11

Distribution of sex

Sex

Sex Proportion # of patients
Male 13
Female 24
Learn more about our community’s experience with retroperitoneal fibrosis.

Talk to people with retroperitoneal fibrosis

39

39

members say they have this condition

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Digestive & Intestinal,Immune, Inflammatory and Infections,Kidneys and Urinary

Learn from others like you living with retroperitoneal fibrosis.
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