What is retroperitoneal fibrosis?

Retroperitoneal fibrosis is a condition characterized by fibrous masses forming in the area behind the stomach and intestines. This excess tissue can block the tubes that carry urine from the kidney to the bladder. Symptoms can include pain, discoloration of the lower limbs and urine changes.

How do members experience retroperitoneal fibrosis?

Top 5 symptoms reported by people with retroperitoneal fibrosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for retroperitoneal fibrosis*

Who has retroperitoneal fibrosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 3
40s 1
50s 5
60s 14
70+ 11

Distribution of sex

Sex

Sex Proportion # of patients
Male 13
Female 24