What is macrophage activation syndrome?
Macrophage activation syndrome is the dysregulation of macrophage-lymphocyte interactions leading to uncontrolled proliferation and activation of macrophages and T cells.
How do members experience macrophage activation syndrome?
Top 5 symptoms reported by people with macrophage activation syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for macrophage activation syndrome*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have macrophage activation syndrome through your profile, those stories and data appear here too.
Who has macrophage activation syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 2 | |
| 30s | 3 | |
| 40s | 1 | |
| 50s | 1 | |
| 60s | 1 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 8 |
Learn more about our community’s experience with macrophage activation syndrome.
Talk to people with macrophage activation syndrome
11
11
members say they have this condition
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Immune, Inflammatory and Infections,Heart, Blood, and Circulatory
Learn from others like you living with macrophage activation syndrome.
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