Dermatomyositis

What is dermatomyositis?

Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. The cardinal symptom is a skin rash that precedes, accompanies, or follows progressive muscle weakness.

How do members experience dermatomyositis?

Top 5 symptoms reported by people with dermatomyositis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for dermatomyositis*

*Data from patients with dermatomyositis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with dermatomyositis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Prednisone Intensol)
Perceived effectiveness
for dermatomyositis (1 evaluation)
Side effects
increased anxiety insomnia
Total evaluations
1
Tried for
dermatomyositis (2)
Treatment

(Gammaglobulin (IVIg))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
dermatomyositis (1)

*Data from patients with dermatomyositis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has dermatomyositis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 16
30s 31
40s 50
50s 83
60s 75
70+ 39

Distribution of sex

Sex

Sex Proportion # of patients
Male 29
Female 261
Learn more about our community’s experience with dermatomyositis.

Talk to people with dermatomyositis

323

323

members say they have this condition

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Skin, Hair, and Nails,Muscles, Bones and Joints,Immune, Inflammatory and Infections

Learn from others like you living with dermatomyositis.
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