Cluster headaches

What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.

How do members experience cluster headaches?

Top 5 symptoms reported by people with cluster headaches*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for cluster headaches*

*Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with cluster headaches*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Topamax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
cluster headaches (4)

*Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has cluster headaches on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 54
30s 222
40s 410
50s 440
60s 271
70+ 98

Distribution of sex

Sex

Sex Proportion # of patients
Male 459
Female 1,013
Learn more about our community’s experience with cluster headaches.

Talk to people with cluster headaches

1,593

1K+

members say they have this condition

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Neurological and Brain

Learn from others like you living with cluster headaches.
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