What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.

How do members experience cluster headaches?

Top 5 symptoms reported by people with cluster headaches*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for cluster headaches*

*Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with cluster headaches*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Topamax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
cluster headaches (4)

*Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has cluster headaches on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 52
30s 224
40s 414
50s 427
60s 268
70+ 97

Distribution of sex

Sex

Sex Proportion # of patients
Male 456
Female 1,004