What is Alport syndrome?
Alport's Syndrome, also known as hereditary nephritis, is a genetic syndrome that affects males more often than females and is associated with progressive renal insufficiency, hearing loss and abnormalities of the eyes.
How do members experience Alport syndrome?
Top 5 symptoms reported by people with Alport syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Protein in urine (proteinuria)
How bad it is
What people are taking for it
Common symptom
Hearing problems
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Alport syndrome*
We currently don't have enough shared data that is made public for this condition.
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Who has Alport syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 4 | |
| 30s | 7 | |
| 40s | 9 | |
| 50s | 22 | |
| 60s | 15 | |
| 70+ | 6 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 32 | |
| Female | 31 |
Learn more about our community’s experience with Alport syndrome.
Talk to people with Alport syndrome
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members say they have this condition
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Kidneys and Urinary,Eye, Ear, Nose and Throat
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