Wilson disease

What is Wilson disease?

Wilson's disease is an autosomal recessive genetic disorder characterized by copper accumulation leading to neurological or psychiatric symptoms and liver disease.

How do members experience Wilson disease?

Top 5 symptoms reported by people with Wilson disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for Wilson disease*

*Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with Wilson disease*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Syprine)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Wilson disease (2)

*Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has Wilson disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 12
30s 17
40s 12
50s 13
60s 7
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 27
Female 29
Learn more about our community’s experience with Wilson disease.

Talk to people with Wilson disease

69

69

members say they have this condition

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Eye, Ear, Nose and Throat,Endocrine, Metabolism and Nutrition,Neurological and Brain

Learn from others like you living with Wilson disease.
Last updated:

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