What is Wilson disease?
Wilson's disease is an autosomal recessive genetic disorder characterized by copper accumulation leading to neurological or psychiatric symptoms and liver disease.
How do members experience Wilson disease?
Top 5 symptoms reported by people with Wilson disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Wilson disease*
Treatment
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
9
Tried for
Wilson disease
(2)
*Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with Wilson disease*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Wilson disease
(2)
*Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has Wilson disease on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 12 | |
| 30s | 17 | |
| 40s | 12 | |
| 50s | 13 | |
| 60s | 7 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 27 | |
| Female | 29 |
Learn more about our community’s experience with Wilson disease.
Talk to people with Wilson disease
69
69
members say they have this condition
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Endocrine, Metabolism and Nutrition,Eye, Ear, Nose and Throat,Neurological and Brain
Learn from others like you living with Wilson disease.
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