Stiff person syndrome

What is stiff person syndrome?

Stiff person syndrome is an uncommon disorder characterized by progressive muscle stiffness, rigidity, and spasm involving the axial muscles, resulting in severely impaired ambulation.

How do members experience stiff person syndrome?

Top 5 symptoms reported by people with stiff person syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for stiff person syndrome*

We currently don't have enough shared data that is made public for this condition.

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Who has stiff person syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 11
40s 28
50s 39
60s 44
70+ 26

Distribution of sex

Sex

Sex Proportion # of patients
Male 43
Female 109
Learn more about our community’s experience with stiff person syndrome.

Talk to people with stiff person syndrome

159

159

members say they have this condition

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Immune, Inflammatory and Infections,Muscles, Bones and Joints,Neurological and Brain

Learn from others like you living with stiff person syndrome.
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