What is Rett syndrome?
Rett syndrome, a neurodevelopmental disorder that affects girls almost exclusively, is characterized by normal early growth and development followed by a slowing of development, distinctive hand movements, slowed brain and head growth, problems with walking, seizures and intellectual disability.
How do members experience Rett syndrome?
Top 5 symptoms reported by people with Rett syndrome*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Rett syndrome*
We currently don't have enough shared data that is made public for this condition.
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Who has Rett syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 5 | |
| 40s | 4 | |
| 50s | 1 | |
| 60s | 2 | |
| 70+ | 0 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 10 |
Talk to people with Rett syndrome
16
16
members say they have this condition