What is retinitis pigmentosa?
Retinitis pigmentosa refers to a group of inherited diseases causing retinal degeneration and eventually blindness. There are multiple genes that, when mutated, can cause the Retinitis pigmentosa.
How do members experience retinitis pigmentosa?
Top 5 symptoms reported by people with retinitis pigmentosa*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for retinitis pigmentosa*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have retinitis pigmentosa through your profile, those stories and data appear here too.
Who has retinitis pigmentosa on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 4 | |
| 30s | 22 | |
| 40s | 28 | |
| 50s | 21 | |
| 60s | 16 | |
| 70+ | 10 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 51 | |
| Female | 52 |
Learn more about our community’s experience with retinitis pigmentosa.
Talk to people with retinitis pigmentosa
115
115
members say they have this condition
Join
Eye, Ear, Nose and Throat
Learn from others like you living with retinitis pigmentosa.
Last updated: