What is retinitis pigmentosa?
Retinitis pigmentosa refers to a group of inherited diseases causing retinal degeneration and eventually blindness. There are multiple genes that, when mutated, can cause the Retinitis pigmentosa.
How do members experience retinitis pigmentosa?
Top 5 symptoms reported by people with retinitis pigmentosa*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for retinitis pigmentosa*
Who has retinitis pigmentosa on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 3 | |
| 30s | 22 | |
| 40s | 28 | |
| 50s | 21 | |
| 60s | 16 | |
| 70+ | 10 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 51 | |
| Female | 52 |