Pyroluria syndrome

What is pyroluria syndrome?

Pyroluria Syndrome is characterized as an abnormality in hemoglobin synthesis resulting in an excretion of pyrrole compound in the urine. This may be associated with other mental and physical conditions. There is a lack of agreement about this condition within the medical community.

How do members experience pyroluria syndrome?

Top 5 symptoms reported by people with pyroluria syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for pyroluria syndrome*

We currently don't have enough shared data that is made public for this condition.

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Who has pyroluria syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 2
40s 3
50s 2
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 7
Learn more about our community’s experience with pyroluria syndrome.

Talk to people with pyroluria syndrome

10

10

members say they have this condition

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