What is primary hyperoxaluria?
Primary hyperoxaluria is a rare condition characterized by the overproduction of oxalate, which when combined with calcium leads to kidney stones and other kidney problems. It is caused by the deficiency of either AGXT or GRHPR, enzymes that normally prevent the buildup of oxalate.
How do members experience primary hyperoxaluria?
Top 5 symptoms reported by people with primary hyperoxaluria*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for primary hyperoxaluria*
We currently don't have enough shared data that is made public for this condition.
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Who has primary hyperoxaluria on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 1 | |
| 30s | 5 | |
| 40s | 2 | |
| 50s | 5 | |
| 60s | 0 | |
| 70+ | 2 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 12 |
Talk to people with primary hyperoxaluria
21
21
members say they have this condition