Primary biliary cholangitis

What is primary biliary cholangitis?

Primary biliary cholangitis (PBC), previously referred to as primary biliary cirrhosis, is a chronic disease of the small intrahepatic bile ducts that is characterized by progressive bile duct damage and eventual loss.

How do members experience primary biliary cholangitis?

Top 5 symptoms reported by people with primary biliary cholangitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for primary biliary cholangitis*

*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with primary biliary cholangitis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(UDCA Ursodeoxycholic acid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
primary biliary cholangitis (1)

*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has primary biliary cholangitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 5
30s 17
40s 25
50s 72
60s 91
70+ 80

Distribution of sex

Sex

Sex Proportion # of patients
Male 34
Female 258
Learn more about our community’s experience with primary biliary cholangitis.

Talk to people with primary biliary cholangitis

324

324

members say they have this condition

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Immune, Inflammatory and Infections

Learn from others like you living with primary biliary cholangitis.
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