What is primary amenorrhea?
Primary amenorrhea is the failure of menstruation to occur by the age of 16 or 2 yr after the onset of puberty or by about age 14 in girls who have not yet gone through puberty. Treatments vary based on the underlying condition.
How do members experience primary amenorrhea?
Top 5 symptoms reported by people with primary amenorrhea*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for primary amenorrhea*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have primary amenorrhea through your profile, those stories and data appear here too.
Who has primary amenorrhea on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 8 | |
| 30s | 18 | |
| 40s | 14 | |
| 50s | 7 | |
| 60s | 3 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 47 |
Learn more about our community’s experience with primary amenorrhea.
Talk to people with primary amenorrhea
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53
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