Post-treatment Lyme disease syndrome

What is post-treatment Lyme disease syndrome?

Post-treatment Lyme disease syndrome (PTLDS), also known as 'chronic Lyme disease', is characterized by persistent symptoms following presumed infection with borrelia burgdorferi. Symptoms may include fatigue, joint pain, or muscle aches along with headaches or difficulty thinking or concentrating.

How do members experience post-treatment Lyme disease syndrome?

Top 5 symptoms reported by people with post-treatment Lyme disease syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for post-treatment Lyme disease syndrome*

We currently don't have enough shared data that is made public for this condition.

Let's build this page together! When you share what it's like to have post-treatment Lyme disease syndrome through your profile, those stories and data appear here too.

Who has post-treatment Lyme disease syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 10
30s 44
40s 63
50s 110
60s 87
70+ 60

Distribution of sex

Sex

Sex Proportion # of patients
Male 57
Female 309
Learn more about our community’s experience with post-treatment Lyme disease syndrome.

Talk to people with post-treatment Lyme disease syndrome

391

391

members say they have this condition

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Immune, Inflammatory and Infections,Skin, Hair, and Nails,Muscles, Bones and Joints,Neurological and Brain

Learn from others like you living with post-treatment Lyme disease syndrome.
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