What is paroxysmal nocturnal hemoglobinuria?
Paroxysmal nocturnal hemoglobinuria is a type of hemolytic anemia where the body's immune system attacks its own red blood cells (RBCs), leading to their destruction (hemolysis). One characteristic of the condition is dark-colored urine due to the presence of RBCs (hemoglobinuria).
How do members experience paroxysmal nocturnal hemoglobinuria?
Top 5 symptoms reported by people with paroxysmal nocturnal hemoglobinuria*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for paroxysmal nocturnal hemoglobinuria*
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Who has paroxysmal nocturnal hemoglobinuria on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 4 | |
| 40s | 2 | |
| 50s | 4 | |
| 60s | 2 | |
| 70+ | 2 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 8 | |
| Female | 7 |
Talk to people with paroxysmal nocturnal hemoglobinuria
22
22
members say they have this condition