What is papilledema?

Papilledema is swelling of the optic disc that is due to elevated pressure inside the skull (intracranial). The swelling usually affects both eyes.

How do members experience papilledema?

Top 5 symptoms reported by people with papilledema*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for papilledema*

*Data from patients with papilledema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with papilledema*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Diamox)
Perceived effectiveness
for papilledema (3 evaluations)
Side effects
Total evaluations
3
Tried for
papilledema (4)

*Data from patients with papilledema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has papilledema on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 9
30s 17
40s 9
50s 14
60s 7
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 54