What is osteogenesis imperfecta?
Osteogenesis imperfecta is a genetic disorder. The term means imperfect bone formation and people with this condition have bones that break easily, often from mild trauma or with no apparent cause. Genetic factors are increasingly being used to define the different forms of osteogenesis imperfecta.
How do members experience osteogenesis imperfecta?
Top 5 symptoms reported by people with osteogenesis imperfecta*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for osteogenesis imperfecta*
Who has osteogenesis imperfecta on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 5 | |
20s | 5 | |
30s | 12 | |
40s | 13 | |
50s | 12 | |
60s | 7 | |
70+ | 4 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 17 | |
Female | 43 |