What is Noonan syndrome?
Noonan syndrome is a genetic disorder that causes abnormal development of multiple parts of the body. Symptoms include, congenital heart defects, delayed puberty, webbed neck, abnormally shaped ears, short stature, and sagging eyelids.
How do members experience Noonan syndrome?
Top 5 symptoms reported by people with Noonan syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Noonan syndrome*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have Noonan syndrome through your profile, those stories and data appear here too.
Who has Noonan syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 2 | |
| 30s | 1 | |
| 40s | 6 | |
| 50s | 1 | |
| 60s | 0 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 11 |
Learn more about our community’s experience with Noonan syndrome.
Talk to people with Noonan syndrome
14
14
members say they have this condition
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Heart, Blood, and Circulatory,Muscles, Bones and Joints
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