What is neurofibromatosis?
Neurofibromatosis is a genetic disorder of the nervous system that causes tumors to grow along the path of nerves. Type 1 is most prevalent and causes neurologic, skin, and sometimes soft-tissue or bone deformities. Type 2 is primarily manifested as congenital bilateral acoustic neuromas.
How do members experience neurofibromatosis?
Top 5 symptoms reported by people with neurofibromatosis*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for neurofibromatosis*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have neurofibromatosis through your profile, those stories and data appear here too.
Who has neurofibromatosis on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 10 | |
| 20s | 17 | |
| 30s | 41 | |
| 40s | 45 | |
| 50s | 40 | |
| 60s | 31 | |
| 70+ | 20 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 66 | |
| Female | 140 |
Talk to people with neurofibromatosis
232
232
members say they have this condition