Narcolepsy

What is narcolepsy?

Narcolepsy is a condition characterized by recurrent, uncontrollable brief episodes of sleep and lapses in consciousness, often associated with hypnagogic hallucinations (seeing and hearing things as one is falling asleep), cataplexy (sudden loss of muscle tone) and sleep paralysis.

How do members experience narcolepsy?

Top 5 symptoms reported by people with narcolepsy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for narcolepsy*

*Data from patients with narcolepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with narcolepsy*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Ritalin)
Perceived effectiveness
for narcolepsy (1 evaluation)
Side effects
Total evaluations
1
Tried for
narcolepsy (3)
Treatment

(Provigil)
Perceived effectiveness
for narcolepsy (1 evaluation)
Side effects
Total evaluations
1
Tried for
narcolepsy (2)

*Data from patients with narcolepsy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has narcolepsy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 6
20s 104
30s 323
40s 383
50s 354
60s 216
70+ 94

Distribution of sex

Sex

Sex Proportion # of patients
Male 256
Female 1,214
Learn more about our community’s experience with narcolepsy.

Talk to people with narcolepsy

1,573

1K+

members say they have this condition

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Mental Health and Behavior,Neurological and Brain,Sleep Issues

Learn from others like you living with narcolepsy.
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