What is myotonic dystrophy?
Myotonic dystrophy is a chronic, slowly progressing, highly variable inherited multisystemic disease. It is characterized by wasting of the muscles (muscular dystrophy), cataracts, heart conduction defects, endocrine changes, and myotonia. Myotonic dystrophy can occur at any age.
How do members experience myotonic dystrophy?
Top 5 symptoms reported by people with myotonic dystrophy*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for myotonic dystrophy*
We currently don't have enough shared data that is made public for this condition.
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Who has myotonic dystrophy on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 5 | |
| 40s | 18 | |
| 50s | 9 | |
| 60s | 9 | |
| 70+ | 5 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 14 | |
| Female | 32 |
Talk to people with myotonic dystrophy
55
55
members say they have this condition
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Muscles, Bones and Joints,Neurological and Brain
