What is myotonia congenita?
Myotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally.
How do members experience myotonia congenita?
Top 5 symptoms reported by people with myotonia congenita*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for myotonia congenita*
We currently don't have enough shared data that is made public for this condition.
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Who has myotonia congenita on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 12 | |
| 30s | 14 | |
| 40s | 13 | |
| 50s | 26 | |
| 60s | 12 | |
| 70+ | 7 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 41 | |
| Female | 42 |
Learn more about our community’s experience with myotonia congenita.
Talk to people with myotonia congenita
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Muscles, Bones and Joints,Neurological and Brain
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