Multiple exostoses

What is multiple exostoses?

Hereditary multiple exostoses is a condition in which people develop multiple benign (noncancerous) bone tumors called exostoses, most often by the time they are 12 years old. The number of exostoses and the bones on which they are located vary greatly among affected individuals.

How do members experience multiple exostoses?

Top 5 symptoms reported by people with multiple exostoses*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for multiple exostoses*

We currently don't have enough shared data that is made public for this condition.

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Who has multiple exostoses on PatientsLikeMe?

Age

Age Proportion # of patients
<20 7
20s 8
30s 20
40s 16
50s 9
60s 9
70+ 5

Distribution of sex

Sex

Sex Proportion # of patients
Male 22
Female 49
Learn more about our community’s experience with multiple exostoses.

Talk to people with multiple exostoses

80

80

members say they have this condition

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Muscles, Bones and Joints

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