Mayer-Rokitansky-Küster-Hauser syndrome

What is Mayer-Rokitansky-Küster-Hauser syndrome?

Mayer-Rokitansky-Küster-Hauser syndrome is a congenital condition characterized as the absence of the upper vagina and uterus. Often there may be other associated defects, i.e. development of only one kidney (unilateral renal agenesis), or other skeletal or organ malformations.

How do members experience Mayer-Rokitansky-Küster-Hauser syndrome?

Top 5 symptoms reported by people with Mayer-Rokitansky-Küster-Hauser syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for Mayer-Rokitansky-Küster-Hauser syndrome*

We currently don't have enough shared data that is made public for this condition.

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Who has Mayer-Rokitansky-Küster-Hauser syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 5
30s 6
40s 7
50s 3
60s 2
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 0
Female 23
Learn more about our community’s experience with Mayer-Rokitansky-Küster-Hauser syndrome.

Talk to people with Mayer-Rokitansky-Küster-Hauser syndrome

26

26

members say they have this condition

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