Mast cell activation syndrome

What is mast cell activation syndrome?

Mast cell activation syndrome (MCAS) is a disorder characterized by episodes of symptoms related to hyper-reactivity of mast cells. Symptoms vary but may include hot flushing, stomach pain or nausea, lightheadness, heart palpitations, and more. Treatment for MCAS is not well established.

How do members experience mast cell activation syndrome?

Top 5 symptoms reported by people with mast cell activation syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for mast cell activation syndrome*

We currently don't have enough shared data that is made public for this condition.

Let's build this page together! When you share what it's like to have mast cell activation syndrome through your profile, those stories and data appear here too.

Who has mast cell activation syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 65
30s 83
40s 103
50s 89
60s 57
70+ 20

Distribution of sex

Sex

Sex Proportion # of patients
Male 46
Female 372
Learn more about our community’s experience with mast cell activation syndrome.

Talk to people with mast cell activation syndrome

456

456

members say they have this condition

Join

Heart, Blood, and Circulatory

Learn from others like you living with mast cell activation syndrome.
Last updated:

Healthcare Centered Around You

Get answers, find care, discover meaningful solutions, and take action - all in one supportive community.

Join now

ADVERTISEMENT

ADVERTISEMENT