What is Marfan syndrome?
Marfan's syndrome is a disorder of the connective tissue that is characterized by loss of elasticity. It affects most organs and tissues, especially the skeleton, lungs, eyes, heart, and the aorta.
How do members experience Marfan syndrome?
Top 5 symptoms reported by people with Marfan syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Low self esteem
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Marfan syndrome*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have Marfan syndrome through your profile, those stories and data appear here too.
Who has Marfan syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 13 | |
| 30s | 22 | |
| 40s | 26 | |
| 50s | 20 | |
| 60s | 24 | |
| 70+ | 11 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 43 | |
| Female | 75 |
Learn more about our community’s experience with Marfan syndrome.
Talk to people with Marfan syndrome
130
130
members say they have this condition
Join
Heart, Blood, and Circulatory,Muscles, Bones and Joints,Eye, Ear, Nose and Throat
Learn from others like you living with Marfan syndrome.
Last updated: