What is Loeys-Dietz syndrome?
Loeys Dietz syndrome is a connective tissue disorder characterized by weakened outpouchings of the aorta (aortic aneurysms) in children. In Loeys-Dietz syndrome, the aortic aneurysms may rupture at a smaller size than other aneurysms.
How do members experience Loeys-Dietz syndrome?
Top 5 symptoms reported by people with Loeys-Dietz syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Loeys-Dietz syndrome*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have Loeys-Dietz syndrome through your profile, those stories and data appear here too.
Who has Loeys-Dietz syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 5 | |
| 30s | 9 | |
| 40s | 4 | |
| 50s | 3 | |
| 60s | 7 | |
| 70+ | 2 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 9 | |
| Female | 24 |
Learn more about our community’s experience with Loeys-Dietz syndrome.
Talk to people with Loeys-Dietz syndrome
39
39
members say they have this condition
Join
Heart, Blood, and Circulatory
Learn from others like you living with Loeys-Dietz syndrome.
Last updated: