What is lichen sclerosus?
Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.
How do members experience lichen sclerosus?
Top 5 symptoms reported by people with lichen sclerosus*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for lichen sclerosus*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have lichen sclerosus through your profile, those stories and data appear here too.
Who has lichen sclerosus on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 15 | |
| 30s | 28 | |
| 40s | 54 | |
| 50s | 83 | |
| 60s | 123 | |
| 70+ | 80 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 33 | |
| Female | 346 |
Learn more about our community’s experience with lichen sclerosus.
Talk to people with lichen sclerosus
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