Langerhans cell histiocytosis

What is Langerhans cell histiocytosis?

Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.

How do members experience Langerhans cell histiocytosis?

Top 5 symptoms reported by people with Langerhans cell histiocytosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for Langerhans cell histiocytosis*

We currently don't have enough shared data that is made public for this condition.

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Who has Langerhans cell histiocytosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 7
30s 14
40s 13
50s 10
60s 8
70+ 7

Distribution of sex

Sex

Sex Proportion # of patients
Male 24
Female 39
Learn more about our community’s experience with Langerhans cell histiocytosis.

Talk to people with Langerhans cell histiocytosis

72

72

members say they have this condition

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Heart, Blood, and Circulatory,Immune, Inflammatory and Infections,Muscles, Bones and Joints,Lungs and Respiratory

Learn from others like you living with Langerhans cell histiocytosis.
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