What is interstitial cystitis?
Interstitial cystitis, also known as painful bladder syndrome, is a non-infectious condition with recurring discomfort or pain in the urinary bladder and the surrounding pelvic region without an identifiable disease.
How do members experience interstitial cystitis?
Top 5 symptoms reported by people with interstitial cystitis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Pain during sex
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Common symptom
Pain in hip(s)
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for interstitial cystitis*
Treatment
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
233
Tried for
interstitial cystitis
(1)
*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with interstitial cystitis*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
interstitial cystitis
(1)
*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has interstitial cystitis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 63 | |
| 30s | 205 | |
| 40s | 390 | |
| 50s | 460 | |
| 60s | 346 | |
| 70+ | 157 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 68 | |
| Female | 1,539 |