Inclusion body myositis

What is inclusion body myositis?

Inclusion body myositis (IBM) is an inflammatory muscle disease, characterized by slowly progressive weakness and wasting of muscles, most apparent in the muscles of the arms and legs. There are two types: sporadic inclusion body myositis (sIBM) and hereditary inclusion body myopathy (hIBM).

How do members experience inclusion body myositis?

Top 5 symptoms reported by people with inclusion body myositis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

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Top treatments taken by people for inclusion body myositis*

We currently don't have enough shared data that is made public for this condition.

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Who has inclusion body myositis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 6
40s 4
50s 17
60s 46
70+ 98

Distribution of sex

Sex

Sex Proportion # of patients
Male 91
Female 76
Learn more about our community’s experience with inclusion body myositis.

Talk to people with inclusion body myositis

189

189

members say they have this condition

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Immune, Inflammatory and Infections,Muscles, Bones and Joints

Learn from others like you living with inclusion body myositis.
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