What is idiopathic hypersomnia?
Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.
How do members experience idiopathic hypersomnia?
Top 5 symptoms reported by people with idiopathic hypersomnia*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Chronic fatigue
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Common symptom
Difficulty waking up
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for idiopathic hypersomnia*
Treatment
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
147
Tried for
idiopathic hypersomnia
(2)
*Data from patients with idiopathic hypersomnia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with idiopathic hypersomnia*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for idiopathic hypersomnia (2 evaluations)
Side effects
Total evaluations
2
Tried for
idiopathic hypersomnia
(2)
*Data from patients with idiopathic hypersomnia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has idiopathic hypersomnia on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 31 | |
| 30s | 128 | |
| 40s | 147 | |
| 50s | 131 | |
| 60s | 70 | |
| 70+ | 20 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 90 | |
| Female | 436 |