What is idiopathic angioedema?

Idiopathic angioedema is a reaction similar to hives. It affects deeper layers of the skin, and the cause is unknown. Angioedema often appears around the eyes, cheeks and/or lips. Symptoms include, swelling of the skin, pain or warmth in the affected areas, and large welts.

How do members experience idiopathic angioedema?

Top 5 symptoms reported by people with idiopathic angioedema*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for idiopathic angioedema*

*Data from patients with idiopathic angioedema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with idiopathic angioedema*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Allegra)
Perceived effectiveness
for idiopathic angioedema (2 evaluations)
Side effects
Total evaluations
2
Tried for
idiopathic angioedema (3)
Treatment

(Benadryl)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic angioedema (1)
Treatment

(Xyzal)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic angioedema (1)

*Data from patients with idiopathic angioedema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has idiopathic angioedema on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 16
30s 46
40s 50
50s 59
60s 59
70+ 29

Distribution of sex

Sex

Sex Proportion # of patients
Male 42
Female 223