Idiopathic angioedema

What is idiopathic angioedema?

Idiopathic angioedema is a reaction similar to hives. It affects deeper layers of the skin, and the cause is unknown. Angioedema often appears around the eyes, cheeks and/or lips. Symptoms include, swelling of the skin, pain or warmth in the affected areas, and large welts.

How do members experience idiopathic angioedema?

Top 5 symptoms reported by people with idiopathic angioedema*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for idiopathic angioedema*

*Data from patients with idiopathic angioedema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with idiopathic angioedema*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Allegra)
Perceived effectiveness
for idiopathic angioedema (3 evaluations)
Side effects
Total evaluations
3
Tried for
idiopathic angioedema (4)
Treatment

(Benadryl)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic angioedema (1)
Treatment

(Xyzal)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic angioedema (1)

*Data from patients with idiopathic angioedema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has idiopathic angioedema on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 17
30s 45
40s 48
50s 62
60s 59
70+ 32

Distribution of sex

Sex

Sex Proportion # of patients
Male 43
Female 225
Learn more about our community’s experience with idiopathic angioedema.

Talk to people with idiopathic angioedema

287

287

members say they have this condition

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Immune, Inflammatory and Infections,Skin, Hair, and Nails

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