Hereditary coproporphyria

What is hereditary coproporphyria?

Hereditary coproporphyria (HCP) is one of the acute hepatic porphyria caused by a defect in the enzyme coproporphyrinogen III oxidase. Acute attacks most often result in neurovisceral symptoms that may include abdominal pain, constipation, and weakness. Less commonly, skin changes may occur.

How do members experience hereditary coproporphyria?

Top 5 symptoms reported by people with hereditary coproporphyria*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for hereditary coproporphyria*

We currently don't have enough shared data that is made public for this condition.

Let's build this page together! When you share what it's like to have hereditary coproporphyria through your profile, those stories and data appear here too.

Who has hereditary coproporphyria on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 3
40s 3
50s 4
60s 2
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 15
Learn more about our community’s experience with hereditary coproporphyria.

Talk to people with hereditary coproporphyria

19

19

members say they have this condition

Join

Endocrine, Metabolism and Nutrition,Neurological and Brain,Mental Health and Behavior

Learn from others like you living with hereditary coproporphyria.
Last updated:

Healthcare Centered Around You

Get answers, find care, discover meaningful solutions, and take action - all in one supportive community.

Join now

ADVERTISEMENT

ADVERTISEMENT