What is hereditary angioedema?
Hereditary angioedema is a condition of the immune system. It causes severe swelling, in the face, arms, legs, lips, eyes, tongue, throat, airway, and abdominal cramping. The trigger of the episode can be unknown or related to stress or trauma.
How do members experience hereditary angioedema?
Top 5 symptoms reported by people with hereditary angioedema*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Rashes (redness, swelling)
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for hereditary angioedema*
We currently don't have enough shared data that is made public for this condition.
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Who has hereditary angioedema on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 19 | |
| 30s | 25 | |
| 40s | 46 | |
| 50s | 39 | |
| 60s | 31 | |
| 70+ | 15 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 36 | |
| Female | 131 |
Learn more about our community’s experience with hereditary angioedema.
Talk to people with hereditary angioedema
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members say they have this condition
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Immune, Inflammatory and Infections,Skin, Hair, and Nails
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