What is familial amyloidosis?
Amyloidosis is a group of diseases in which protein is deposited locally in specific organs or throughout the body. Hereditary amyloidosis is an inherited form passed down in families that often affects the central nervous system and kidneys.
How do members experience familial amyloidosis?
Top 5 symptoms reported by people with familial amyloidosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for familial amyloidosis*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have familial amyloidosis through your profile, those stories and data appear here too.
Who has familial amyloidosis on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 6 | |
| 40s | 5 | |
| 50s | 4 | |
| 60s | 5 | |
| 70+ | 9 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 11 | |
| Female | 20 |
Learn more about our community’s experience with familial amyloidosis.
Talk to people with familial amyloidosis
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