What is hereditary hemorrhagic telangiectasia?
Hereditary hemorrhagic telangiectasia, a rare genetic disorder, is characterized by abnormal blood vessel formations that may cause abnormalities in the lungs, brain, spine, and liver. The main symptom is bleeding. Treatment and evaluation may improve quality of life and prevent other complications.
How do members experience hereditary hemorrhagic telangiectasia?
Top 5 symptoms reported by people with hereditary hemorrhagic telangiectasia*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for hereditary hemorrhagic telangiectasia*
We currently don't have enough shared data that is made public for this condition.
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Who has hereditary hemorrhagic telangiectasia on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 3 | |
| 40s | 8 | |
| 50s | 16 | |
| 60s | 18 | |
| 70+ | 20 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 18 | |
| Female | 47 |
Talk to people with hereditary hemorrhagic telangiectasia
73
73
members say they have this condition