What is Ehlers-Danlos syndrome?
Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. All types of Ehler-Danlos syndrome affect the joints and many also affect the skin.
How do members experience Ehlers-Danlos syndrome?
Top 5 symptoms reported by people with Ehlers-Danlos syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Neck pain
How bad it is
What people are taking for it
Common symptom
Excessive daytime sleepiness (somnolence)
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Ehlers-Danlos syndrome*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have Ehlers-Danlos syndrome through your profile, those stories and data appear here too.
Who has Ehlers-Danlos syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 37 | |
| 20s | 292 | |
| 30s | 402 | |
| 40s | 430 | |
| 50s | 374 | |
| 60s | 193 | |
| 70+ | 62 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 131 | |
| Female | 1,610 |
Learn more about our community’s experience with Ehlers-Danlos syndrome.
Talk to people with Ehlers-Danlos syndrome
1,910
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Skin, Hair, and Nails,Muscles, Bones and Joints
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