What is ectodermal dysplasia?
The ectodermal dysplasias are inherited disorders that involve abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body. There are more than 150 different types.
How do members experience ectodermal dysplasia?
Top 5 symptoms reported by people with ectodermal dysplasia*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for ectodermal dysplasia*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have ectodermal dysplasia through your profile, those stories and data appear here too.
Who has ectodermal dysplasia on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 4 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 3 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 5 |
Learn more about our community’s experience with ectodermal dysplasia.
Talk to people with ectodermal dysplasia
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13
members say they have this condition
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Skin, Hair, and Nails
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