What is dystonia?
Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal posture due to disordered tonicity of muscles. Sustained muscle contraction (dystonia) may be caused by a number of conditions.
How do members experience dystonia?
Top 5 symptoms reported by people with dystonia*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain in back of neck and shoulders
How bad it is
What people are taking for it
Common symptom
Knots on the back of neck and shoulders
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Foot dystonia
How bad it is
What people are taking for it
Common symptom
Neck pain
How bad it is
What people are taking for it
Common symptom
Legs shaking
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for dystonia*
We currently don't have enough shared data that is made public for this condition.
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Who has dystonia on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 9 | |
| 20s | 23 | |
| 30s | 60 | |
| 40s | 111 | |
| 50s | 125 | |
| 60s | 169 | |
| 70+ | 140 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 154 | |
| Female | 473 |
Learn more about our community’s experience with dystonia.
Talk to people with dystonia
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