Chediak-Higashi syndrome

What is Chediak-Higashi syndrome?

Chediak-Higashi Syndrome is a very rare condition characterized by problems with the immune and nervous systems. Individuals with the disease often have very pale skin, hair, and eyes, and are susceptible to increased infections in the lungs, skin, and mucous membranes.

How do members experience Chediak-Higashi syndrome?

Top 5 symptoms reported by people with Chediak-Higashi syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for Chediak-Higashi syndrome*

We currently don't have enough shared data that is made public for this condition.

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Who has Chediak-Higashi syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 0
30s 1
40s 1
50s 0
60s 0
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 1
Learn more about our community’s experience with Chediak-Higashi syndrome.

Talk to people with Chediak-Higashi syndrome

4

4

members say they have this condition

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Immune, Inflammatory and Infections,Heart, Blood, and Circulatory

Learn from others like you living with Chediak-Higashi syndrome.
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