Myalgic encephalomyelitis/chronic fatigue syndrome

What is myalgic encephalomyelitis/chronic fatigue syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

How do members experience myalgic encephalomyelitis/chronic fatigue syndrome?

Top 5 symptoms reported by people with myalgic encephalomyelitis/chronic fatigue syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for myalgic encephalomyelitis/chronic fatigue syndrome*

*Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (4 evaluations)
Side effects
emotional distress insomnia
Total evaluations
4
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome (9)
Treatment

(Lyrica)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (3 evaluations)
Side effects
Total evaluations
3
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome (7)
Treatment

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome (1)

*Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has myalgic encephalomyelitis/chronic fatigue syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 21
20s 280
30s 1,093
40s 2,975
50s 5,737
60s 5,930
70+ 2,905

Distribution of sex

Sex

Sex Proportion # of patients
Male 1,648
Female 17,357
Learn more about our community’s experience with myalgic encephalomyelitis/chronic fatigue syndrome.

Talk to people with myalgic encephalomyelitis/chronic fatigue syndrome

20,313

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