Cardiofaciocutaneous syndrome

What is cardiofaciocutaneous syndrome?

Cardio-facio-cutaneous (CFC) syndrome is a rare genetic condition affecting primarily the heart, facial features, and skin and hair. CFC occurs due to a gene mutation. Although there is no cure, there are multiple interventions available to improve the lives of individuals with CFC.

How do members experience cardiofaciocutaneous syndrome?

Top 5 symptoms reported by people with cardiofaciocutaneous syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for cardiofaciocutaneous syndrome*

We currently don't have enough shared data that is made public for this condition.

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Who has cardiofaciocutaneous syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 0
30s 0
40s 0
50s 2
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 3
Learn more about our community’s experience with cardiofaciocutaneous syndrome.

Talk to people with cardiofaciocutaneous syndrome

6

6

members say they have this condition

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