What is bladder exstrophy?
Bladder exstrophy occurs when a child is born with their bladder outside of the body, protruding from the abdominal wall. The bladder and supporting structures themselves are also not properly formed. This can be repaired with surgery.
How do members experience bladder exstrophy?
Top 5 symptoms reported by people with bladder exstrophy*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for bladder exstrophy*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have bladder exstrophy through your profile, those stories and data appear here too.
Who has bladder exstrophy on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 4 | |
| 30s | 7 | |
| 40s | 3 | |
| 50s | 2 | |
| 60s | 4 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 14 | |
| Female | 8 |
Learn more about our community’s experience with bladder exstrophy.
Talk to people with bladder exstrophy
23
23
members say they have this condition
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Kidneys and Urinary
Learn from others like you living with bladder exstrophy.
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