What is Bainbridge-Ropers syndrome?
Bainbridge Roper Syndrome is a rare genetic syndrome associated with a mutation in the ASXL3 gene. Individuals with this condition have intellectual disability, severe feeding problems, motor skill issues, and increased mortality. It can resemble Bohring-Opitz syndrome but is not the same.
How do members experience Bainbridge-Ropers syndrome?
Top 5 symptoms reported by people with Bainbridge-Ropers syndrome*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Bainbridge-Ropers syndrome*
We currently don't have enough shared data that is made public for this condition.
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Who has Bainbridge-Ropers syndrome on PatientsLikeMe?
Age
Age | Proportion | # of patients |
---|---|---|
<20 | 5 | |
20s | 4 | |
30s | 4 | |
40s | 4 | |
50s | 4 | |
60s | 0 | |
70+ | 0 |
Distribution of sex
Sex
Sex | Proportion | # of patients |
---|---|---|
Male | 7 | |
Female | 13 |
Talk to people with Bainbridge-Ropers syndrome
25
25
members say they have this condition