What is alpha 1 antitrypsin deficiency?
Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.
How do members experience alpha 1 antitrypsin deficiency?
Top 5 symptoms reported by people with alpha 1 antitrypsin deficiency*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Shortness of breath (dyspnea)
How bad it is
What people are taking for it
Common symptom
Exhaustion
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Swelling in the abdominal region
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for alpha 1 antitrypsin deficiency*
We currently don't have enough shared data that is made public for this condition.
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Who has alpha 1 antitrypsin deficiency on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 18 | |
| 30s | 50 | |
| 40s | 41 | |
| 50s | 61 | |
| 60s | 79 | |
| 70+ | 59 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 99 | |
| Female | 189 |
Learn more about our community’s experience with alpha 1 antitrypsin deficiency.
Talk to people with alpha 1 antitrypsin deficiency
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