What is acute intermittent porphyria?
Acute intermittent porphyria is a rare genetic disorder that primarily affects the nervous system. It is characterized by intermittent acute episodes of abdominal, mental and neurological symptoms that appear quickly and usually last a short time.
How do members experience acute intermittent porphyria?
Top 5 symptoms reported by people with acute intermittent porphyria*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Excessive gas
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Abdominal pain
How bad it is
What people are taking for it
Common symptom
Abdominal bloating
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for acute intermittent porphyria*
We currently don't have enough shared data that is made public for this condition.
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Who has acute intermittent porphyria on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 7 | |
| 40s | 15 | |
| 50s | 17 | |
| 60s | 21 | |
| 70+ | 10 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 10 | |
| Female | 64 |
Learn more about our community’s experience with acute intermittent porphyria.
Talk to people with acute intermittent porphyria
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Learn from others like you living with acute intermittent porphyria.
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